 |
Eric is working to update this page.
Please read The Eric Drew Story for the most current
information to date.
- Thursday, July 22 2004:
Deepest respects to Judy Schram (42 years) and her family (three young girls)
who are away in the hospital room fighting like hell to hang on to her life
in the room next door to me in the hospital room next to mine here in Minneapolis.
I hope the pebble of HOPE I gave them made some sort of difference. To Jeff
Chen and Scott Martin, friends whom have also passed away recently after fighting
with everything they had, leaving behind a family scorched by pain and bewilderment.
The sadness and loss is so immense that I sort of feel dull at the moment.
(11:30pm 0721)
To Mike and Rosie’s sister as well, and to John Sanchez, all of whom have
touched my life, I have tried to help, and who have passed away like a warm
breeze in the night. All the more reason I have to fight, so that they can
continue to live, and to fight against the evil people that continue to prey
upon helpless hospital patients that the people who stole my ID from the hospital
in Seattle not figuring that I would live to fight back.
As for me, I am doing fine both physically and emotionally. It is a surreal
journey to crawl the walls of a hospital like this, waiting for my body to
die so my spirit can be re-booted and given a new tomorrow morning by an unknown
baby donor of placenta and umbilical cord blood. (being flown in from Italy)
I can tell that I am getting closer to being ready as my urine has turned
orange with dead cells and my skin is deep red from the burns of 18,000,000,000
volts of gamma rays soaking my body every day for the past four days on top
of ablative chemo.
My trip out here with Nicole was a whirlwind, but it was a great time. We
drove from Seattle to Spokane, had dinner with friends Rob and Anne Lee and
fam, then went on to stay at the Coeur D’Alene resort that night. After a
nice breakfast in Coeur D’Alene Idaho, we drove all the way through to Livingston
Montana where we met a nice cop who recognized me and let me off of a speeding
ticket and gave me directions to the best bar. Heading straight south into
Yellowstone Wyoming, we were immediately confronted by Mammoth Hot Springs,
where the herds of elk graze under bubbling blue and white boiling mineral
flows.
That day at Yellowstone we are lucky to see various geysers go off simultaneously
including Old Faithful, and my entrepreneurial blood was stirred when I found
out that the entire beautifully rustic Yellowstone lodge was closed for the
entire winter months. Wouldn’t it be great to open a section of it for exclusive
snowmobiling tours with the volcanic activity amongst the Buffalo herds.
Yellowstone was something but East was calling so we headed west for Cody
WY where we stayed next to the very large and loud Cody Rodeo commemorating
Buffalo Bill Cody. The Bighorn mountain range was absolutely breathtaking
the next day while Nicole slept, and one we hit the Black Hills I was awestruck
by the beauty of Spearfish Canyon outside of Spearfich and Sturgis SD (biker
rally). We took the canyon around to Deadwood (HBO show) that still lives
up to its name for casinos and western rugged beauty. Friday night on a full
moon was a blast and many befriended locals told me what they thought about
Wild Bill Hickok and where he was gunned down just inside a casino bar on
Main St.
The highlight had to be the 4th (actually Saturday the 3rd of July) at Mount
Rushmore. I could not think of a better place to give dedication to our most
famous presidents and their immense faces carved out of the mountain being
shrouded by endless fireworks. I will be attaching a video for all to see.
The next day we zig zaged through the Black Hills and visited the Crazy Horse
Memorial (very impressive and will be even more in the years to come) saw
more buffalo and then headed out to the Badlands. We visited a couple of dinosaur
digs and took in the surreal colorful landscape before shooting all the way
across to South Dakota to Sioux Falls amongst the fireworks all around. Did
not experience much in Sioux falls as there was nothing open on Sunday the
fourth, so we drove straight on through Minnesota and arrived early in the
evening on Monday the 5th in Minneapolis exactly one week after we started
out journey.
Since I have been here I have been stabbed, poked, proded, thread with tubes,
chemo’d, and heavily radiated with 18,000,000,000 volts per day for four days.
My system has now been shut down and I am waiting to re-boot with a new system
tomorrow morning at about 11:00am California time.
All thoughts and prayers are greatly appreciated, and I love you all very
much. My direct hospital number is 612-273-0217. Nicole sends her best wishes
to everyone as well.
ITS ALL GOOD,
LOVE
ERIC
- Tuesday, June 22th, 2004:
Hello to all of my family and loved ones,
I had been traveling back towards Seattle by car over the last few weeks and
stopping to see people along the way. I have had some periods of enjoyment
but the decision as to what to do next has being weighing heavily upon me.
Now that I am in Seattle and all set to go ahead with another half match transplant
with my brother Michael, it has been decided that I need to go through a much
more agressive and dangerous procedure in Minneapolis, Minnesota - a cord
blood procedure. So the packing and the nightmares begin again. I will have
8 times as much chemo and radiation in Minnesota as I would have had in Seattle,
and cord blood is still experimental, but it seems it may give me more of
a chance at long term survival than the method here in Seattle.
For now, I will be traveling across the country by car with my NEW FIANCE
Nicole and playing golf as much as I can. I am feeling healthy right now,
so I will try to enjoy it as much as possible before I go in for the #1 fight
of my life!!!!! I will keep on fighting.
As always, love you, miss you! Eric
- Tuesday, May 4th, 2004:
Hello everyone in cyberspace.
I am doing quite well considering all that has been going on. I had an experimental
half matched bone marrow transplant in Seattle on December 23, and then went
through three months of hell in the hospital trying to get through it. Unfortunately,
two days before moving back to the Bay Area to begin a new life, they informed
me that the transplant had failed and that the leukemia is back. It seems
that this "Philadelphia" chromosome is, so far, impossible to kill in adult
ALL leukemia patients without a fully matched transplant. I do not have that
match. Even then people are dying from rejection and immunodeficiency. There
has got to be another solution that nobody has thought of before. I have a
cancer of my lymphoid system, specifically the B cell lymphocytes in my immune
system. How can one kill someone's immune system without killing the patient?
I am talking to doctors in Germany and Switzerland, as well as the best brains
in the US. Life is day to day not knowing whether the cancer is taking over
or what to do about it if it does. I am taking a drug from Novartis called
Gleevec (Imatinib), which makes you ill in its own right; it has only been
proven to hold back the disease for a couple of months, if at all. It is such
a weight and burden to carry with me all the time.
On the bright side, I am healthier now than I have been since I became sick.
I have a bit of fuzzy curly dark hair and can feel most of my legs again (unfortunately
not my feet yet). I left Seattle one month ago and have driven over 3,000
miles visiting friends and relatives all over California. I spent some nice
time on the beaches in Humboldt, Santa Cruz, and in Santa Barbara. I biked
and canoed around a beautiful and hot Lake Tahoe with the snow still covering
the peaks. I've spent lots of time with nieces, nephews, and new kids everywhere
from all of my family and friends as well as catching up and spending time
with everyone I can - it has been a pleasantly exhausting trip. I did take
time to go to a golf/spa in Scottsdale Arizona where I rode horses with Apaches
on the reservation and learned to rope calves (quite well I must say).
During my 8 month stay in Seattle I was not only battling for my life but
also battling a severe case of ID fraud. One of the hospital workers who saw
me everyday knew that I had a very little chance of living through last year
and used my personal information to establish a new "Eric Drew" with credit
cards, bank accounts, and government IDs. I knew this was true from the beginning
but nobody would listen to me (police, hospitals, FBI, US Postal inspectors,
city county state and federal prosecutors, doctors, nurses, the media) They
all thought that I was blowing smoke and even if it was true I could never
find out who was doing it or prove it. "Just cancel the accounts, file a complaint,
and move on or you are going to stress yourself to death" they said to me.
Well the calls from banks and creditors demanding money that I had never spent
kept coming in more and more each day, and no matter how sick I was I resolved
to fight back.
After two months of investigating and gathering evidence, crying to news reporters
about the situation, and meeting with scary people secretly on the docks of
Seattle with tubes running out of my chest barely able to walk, I busted him
red handed. I was able to isolate video of the perpetrator buying merchandise
with fraudulent credit cards and ID's with his picture and my name. NBC showed
it on prime time TV news as the top story and approx 20 people called in right
away to identify him as Richard Gibson and an employee where I was being treated.
The police went to arrest him, but he went into hiding for three days before
turning himself in and getting fired from his job. The prosecutors in Seattle
did not even know how to press charges against him as I had all the evidence
so they ended up letting him go.
This turned out to be a good thing as I had been contacting the US Attorneys
Office in DC who had heard of the story and finally agreed to assign me some
help. The head Federal Prosecutor in Seattle (Vince Lombardi) called me two
days after the arrest and told me that he would be assigning a US attorney
as well as at least one FBI Special agent to my case. This could be the first
time the Federal government has been able to prosecute someone for violation
of the new HIPPA laws protecting patients, as well as federal mail fraud,
ID theft, forgery, grand larceny, and many other federal crimes. I am now
in the federal witness protection and assistance program and am working with
the hospital for them to pay attorneys to help clean this mess up.
It has been quite a long ride and it is not over...
- Sunday, February 24th, 2004:
Many of you are wondering why I have been so silent over the last month. Some
are angry that I have not kept up communication, and some are worried about
my condition. First of all please again accept my apologies, and once you
hear about the last month it will make sense why I have not been more communicative.
Just after my last journal update, I was taken ill by a rare for of juvenile
virus (RSV) known to cause pneumonia in infants. Being only three weeks old
myself post transplant, the disease got quite serious and I was hospitalized
and in much pain for about a week. It was a horrible sickness that lasted
approximately 2 weeks, but I came through without pneumonia due to a special
medication for leprosy.
When I was released and came to my senses, I realized that the police reports
and the reports I had made to creditors back in October that someone had gotten
a hold of my information from my medical files and was trying to steal my
identity went unheard. The thieves now had several credit cards in my name,
bank accounts, ID's, everything, and were going on a nice holiday shopping
spree in my name while I was fighting for my life in the hospital. From my
bed I spent 10-12 hours per day investigating this case (what address the
fraud cards went to- who owns the house - I got pictures - getting descriptions
in writing from storekeepers who were robbed - acquiring surveillance tapes
- everything. I have phone numbers of the perp's employers and everything.
The Police, the hospital, the press, nobody was helping me investigate this
case, even though I had originally warned them about this fraud just after
I first moved here in October of 2003. I had gathered enough evidence to hand
the case to the police on a silver platter, and they still have done nothing.
I finally got one of the major news stations to assist me with my story (see
www.KING5.com and enter Eric Drew for the interviews). Of course, why would
the hospitals help me? It is a multi-million dollar HIPPA violation if my
hospital records were to be proven breached (which is exactly what happened
- the criminals had no other way to obtain so much of my personal information
upon my arrival in Seattle).
The case is still unresolved even after I handed the authorities all the evidence
they need to make an arrest. It has been a huge nightmare to fight this while
being extremely sick and in bed, and has taken all my extra time and energy
(not like I had any extra to begin with). Many people tell me that I should
let it go and let the police handle it. I did this in October, and look where
it got me.
All this time the clinic had began what was to be my last series of chemos.
Unfortunately, they have to be injected into my spinal column. I had six shots
to go and I made the first three without too much trouble. About three days
after the third spinal shot (on Valentine's Day) I began to have a serious
headache in the evening which quickly spread to a massive attack of cranial
and spinal meningitis. I was quickly paralyzed and my mother called for the
ambulance as I was screaming in agony and could not move. The amount of pain
was indescribable. I cried and begged and pleaded for 5 days for them to do
anything necessary to stop the skull crushing pain. There was nothing to do
but ride it out. I did not think humans could endure such pain and live to
talk about it, but the pain subsided finally on Friday.
The doctors have officially called an end to all chemo treatments, and from
now on my only focus is getting the transplant to settle in so I can come
home early in April. It has been harder than I can describe and several times
I have been very close to crossing the line between life and death, which
is why I have not been in touch. Now, there is light at the end of this lonely
dark and painful tunnel.
I love you all,
God Bless You for your kind words and support
ERIC
- Monday, January 12th, 2004:
Hello Friends and Loved Ones, and future Friends and Loved Ones, which should
just about cover all of you.
Well I did it!! I have finally had a haploid (half mismatch) bone marrow
transplant on the 23rd of December (2 days before X-mas) and am now on day+
18. Before I give you a summary of the last two weeks and an update on my
progress, I want you to know that the transplant is proceeding exceptionally
well and I am doing even better than expected in many ways. I say this as
it has been a very rocky road and I did not want there to be any unnecessary
worries.
I had the transplant in the mid afternoon as the docs had to extract 1.6
litres of bone marrow from my half sister Alexa's hips and then put it through
a series of processes while they were prepping my body for lots of foreign
material. The transplant was simply a transfusion into my bloodstream which
took about 2 hours without any complications. They held me for 2 more hours
for observation and I was on my way home. Deborah Parente my Yoga instructor
and energy therapist from Los Gatos was there along with my parents.
About two hours after getting home, my body went commenced into violent
rigors (convulsions, shivers and cramps), obviously trying to reject the
graft. We were able to calm things down with medications and some hot soup
which made me doze off for a little bit. I woke a short time afterward in
a sweat with temperatures reaching 104 Degrees F and was immediately rushed
off to the hospital where I was kept for 4 days until stabilized and able
to take heavy doses very toxic follow up chemotherapy to keep Alexa's marrow
from attacking and killing my now very frail system. Oh well, there does
another X-mas.
I was then sent home to rest while coming in daily for blood and vital
sign checks. Nausea, headaches, rashes, and swelling in my legs where my
main focuses as they were quite severe. On December 30th my sporadic fevers
hit the appointed threshold of 101 and I was back in the hospital for 3
days of observation and IV nutrition and antibiotics. Oh well, there goes
another New Year. When they released me on New Year's Day, my blood counts
were coming up and I was regaining my strength more rapidly than anyone
expected.
Then came this last week. My blood counts dropped severely and the chemos
and anti-rejection drug side effects hit hard, loosing my hair, taste smell,
20 lbs, and bearing tons of excruciating pain. Feels like someone dipped
my legs in a deep fryer, put my head in a vice, burned me with radiation(
as they did), stuck a pitchfork in my stomach and will not stop trying to
turn it, and hit me with a truck on my right side, (from falling down a
staircase due to numb legs). Why does it have to be sooo painful?
Anyway, I am tired of lying in bed in pain. I got up today, had a good
breakfast, and went off to walk a couple miles from home to the clinic as
I really need to exercise. Again, in the grand scheme of things, everything
is going well. Therefore it is crucial that I do not focus on the pain as
it begins to permeate every aspect of my life. I need to be around positive,
cheery, nurturing, and optimistic people only right now, including myself.
Love you all very much!!
Eric
- Sunday, December 28th, 2003:
I have had my transplant which was performed on the 23rd, and, after 4 days
of having 104 degree temperatures with intermittent convulsions I am beginning
my long fight back through chemo to get the new marrow to stick. I will be
back. Please let everyone know their prayers are not in vain.
Love you all,
ERIC
- Wednesday, December 10th, 2003:
I hope you all are doing great! It has been one setback after another up here
and all of the people they have done this half matched transplant on have
now died (12 out of 12). I pray that having my transplant (re-birth) on about
X-mas will give me God's strength to get through this.
God Bless you all for all the help you are giving me. Hope you can come to
visit Seattle soon.
Warmest Regards,
ERIC
- Tuesday, November 25th, 2003:
Happy Thanksgiving To Everyone!
Thanksgiving is in two days and already I am upset that I will miss the "going
out the Wednesday night before in Los Gatos" for the first time since I was
16 years old. Everyone please have one for me!!!
I was very excited until today; my transplant got put off until next month
so I booked tickets for my mother and me to come home next week for a little
break (for the first time since I came to Seattle. I got approval from the
doctors and everything was set. Today they called me to say that I cannot
go and I must begin radiation and chemo again. I just cannot seem to get a
break.
Oh well, it looks like it will be the beginning of April before I can leave
Seattle (unless I sneak away here and there).
Love you all,
ERIC
- Sunday, November 23rd, 2003:
Thank you very much to all of the people who coordinated, volunteered and
attended the Monte Carlo Night fund-raiser to support the Leukemia Fund. The
other beneficiaries and I are touched by your giving spirit and your continued
support. I regret that I was not medically able to be there myself, but I
heard that it was a great success. Thank you all again very much.
I don't know how to thank you all as much as I would like to.
Currently, on the medical front, everything is on hold since my donor (my
brother) got mono. A new sibling is being prepared to be my donor (my half
sister Alexa Gregory) and the transplant is now tentatively scheduled for
mid December, which was the month I was first diagnosed. One year fighting
this disease so far. I long for health and normality.
ERIC
- Monday, November 17th, 2003:
Hello everyone out there. I had better give you an update on my condition
as things have changed suddenly in the last few days. Basically, I got up
here to Seattle for bone marrow transplant that I thought was going to be
a 50/50 shot at survival. When I learned it was more of an 85-15% against
me due to the impossibility of finding a match because of the mutated chromosomes
in my bone marrow from whatever poisoning brought on this Leukemia, I backed
out. I wanted to check into umbilical cord transplants, various experimental
chemos, and any other option which may give me better odds.
Well none of those options worked out and my disease was on its way back,
so I made the decision to move ahead with the transplant using the only viable
donor which was my half brother Michael in Chicago. My half sister Alexa who
lives here in Seattle was ruled out because she is in the medical industry
and had shown exposures to certain antibodies, and my only other match, my
half brother Don, was ruled out because of a recent trip to Thailand. I was
scheduled to start my preparation last week which I did (painful radiation,
spinal injection chemo poisons, bone marrow biopsies (core samples) and various
intervenous chemos. My transplant was scheduled for the day before Thanksgiving
which held some sort of positive milestone or landmark for me to get excited
about and shoot for.
After going through one week of this torture, everything ground to a halt
last Friday Nov 14th at 5:00pm when I was informed that Micheal had contracted
Mono and was disqualified as a donor. All of the prep I went through this
week was for not.
Now I am in Limbo, can't sleep, can't sit still, and can't seem to stop crying.
This waiting around knowing my disease is coming back with the docs just shrugging
their shoulders is just killing me. I will try to force my self out for a
walk in this freezing snowy afternoon in Seattle.
God Bless,
ERIC
- Saturday, November 8th, 2003:
I love you all very much and miss you terribly. I start radiation conditioning
for my transplant this week, and will have two surgeries to prepare this week
also. Tired of being so sick, I am ready to fight and get over this, no matter
what small percentages that docs give me.
Sweet dreams,
ERIC
- Monday, November 3rd, 2003:
Recent Events - Eric has been going through chemotherapy since the week of
October 26th and has also moved to a new, lower cost, medical housing facility.
Between the chemotherapy and this last week's move it has been difficult for
Eric to write, but he intends on doing so when he can. In case you do not
know, the Philedelphia Chromosome has come back in full force - even after
taking the new experimental drug, Geevec. Eric has no other choice but to
complete another full round of chemotherapy before they can do the bone marrow
transplant. Eric was really hoping to come to the Monte Carlo Night to visit
with his friends/fund supporters and still will be there, if at all possible,
but he is expects to be in the process of getting the bone marrow transplant
during that time so it may be very difficult. We will be giving a full report
on Eric's status at the event if he cannot make it.
The Fund Volunteers truly appreciate, once again, for your heart felt support.
- Friday, October 31st, 2003:
Hello Everyone!! HAPPY HALLOWEEN!!! Yes, I am still alive and fighting this
terrible war that has been declared on my body by itself. It was decided that
the best combination to fight off my Leukemia was to take both Gleevec and
Interferon (both are types of chemos with nasty side effects). They have kept
my Leukemia from "blasting out", but they have not killed the underlying cause
of the cancer. (The mutated cells in my bone marrow that cause this rare reaction).
Whatever poison I was exposed to must have been very strong to cause this
big of a mess in the cellular chromosomes of my bone marrow. Now the only
solution is a bone marrow transplant as I am sitting on a ticking time bomb
inside me. The problem is that I do not have a real match and nobody has lived
through a non-match transplant with my type of cancer before. The closest
match is my half brother, Michael, in Chicago, who will fly here to Seattle
ASAP to begin blood storage for the transplant. They give me a 15% chance
to make it which is a heck of a lot better than 0!! Honestly, I'd rather walk
through an Iraqi minefield.
Sometimes I feel angry, blaming the industrial machine that seems to benefit
everyone, even most the victims (before they get sick). The machine of the
medical industry employing millions of people; the pharmaceutical industry
selling us billions of dollars in expensive medications; the trillion dollar
chemical industry (processing chemicals, preservatives and pesticides); the
tobacco growers, the farmers, and food producers who use carcinogenic chemicals
and possibly dangerous genetic modifications to maximize their profits. The
nutritional supplement and organic food industries who benefit from the fear
that people have as cancer becomes even more prevalent and publicized. The
insurance companies who justify charging outrageous sums of money that the
average person can't really afford to cover costs of treatment and still profit.
The lawyers who represent all of these interests and lobby in Washington to
keep FDA regulations low so all of these industries benefit. It seems like
our society is promoting disease and everyone benefits (until you or someone
you know gets sick). Not that there is an organized conspiracy or anything
like that. Maybe it is because we are adjusting to moving away from a manufacturing
society and the industrial machine is adjusting itself as it needs to in order
to live and grow? Maybe the only way we know how to sustain ourselves and
our society is to grow (in population and in financial growth)? What are we
going to do? Start consuming ourselves by producing more disease so we can
build an economy on that? It sounds like "Soylent Green" to me. I sometimes
feel like I am being herded through the "machine" with a lot of other patients.
The machine is like its own entity, living breathing and growing. How can
I not be angry at that? I am going through hell, and I see this machine benefiting
from it.
How could someone young and healthy like me get such a disease? Many people
say that the cause of so much cancer is probably just as much due to the fact
that we are living so much longer these days that it is just natural. But
that does not apply to me! I am only 36!! Again, how can I not be angry at
this industrial machine?
HOWEVER, I do realize that holding onto this anger and blame will only take
my energy away from where I need it to survive. Like a knot, the more I pull
on it the tighter it will get. Release is the only way I will get through
this and I know that. Some have even said that I need to release my fear of
dying as this alone will take my energy I need to survive.
Well, when I do not feel angry, I often feel sad. Sad at the possibility that
I may never get to see all of you ever again. The wonderful people who have
made up the memories that are my life.
What am I saying is that we all know that it will take something with a better
name than "Leukemia" to take me down!!! I'm a fighter!!!
Lots of Love,
ERIC
- Friday, October 17th, 2003:
Hello all of you in cyberspace. Yes, I am still alive and I apologize for
not being more communicative. I have always been a fan of the phrase "If you
don't have anything positive to say, don't say anything at all". Well, I really
haven't had anything great to report. As you may know, the mutated Philadelphia
chromosome cells (prelude to malignant Leukemia) were coming back and I went
on an experimental drug, Gleevec, to knock them back. Yesterday they took
another core sample from my hip bone (ouch!!!!!) to test and see where I am
at right now. They will probably start me on Interferon treatments next week
(another enzyme inhibitor with more side effects) which should put me into
total cytogenetic remission (pretty smart huh?). I have had to become an overnight
molecular biologist to figure out how I want to get through this.
If you are interested, they do these tests (very expensive) to see if my bone
marrow has any bad stuff in it. One is called a FISH test where I think they
spread out 1,000 cells and look though an infrared computerized microscope
that looks inside cells and scans the DNA for abnormalities. Pretty cool technology!
The other is an even more sensitive PCR test - I have no clue as to how that
one works. I should do some Internet surfing I guess.
Last week I had a few good days and passed out invites for the fundraiser
next week "The Luau for Leukemia", but then I fell ill and have been in bed
for 5 days experiencing every extreme symptom that you can imagine. Stopping
some medications and adding others has thrown my body for a loop, and, on
top of that, I got the flu. I Thought I was going to die and honestly wished
I had a couple of times (just kidding-but I did feel that bad).
I am feeling a little better today, but I am still quite ill. The hemotologists/oncologists
(blood cancer docs) seem to be pushing me towards the transplant also. Maybe
this is my only shot even though it is a long one? God bless you all.
- Friday, October 3rd, 2003:
Today was the day of reckoning - the last meeting scheduled with the "Lime"
bone marrow transplant team at the HUTCH/SCCA. It was the day that my girlfriend
Nicole, my Dad, my Mom, the nurses, the docs and, of course, me laid out the
options for saving my life. Various types of transplants and some experimental
methods were discussed; in each case, all have a very low probability of success.
And, THEN I was given an ultimatum. Choose a haploid transplant, or be gone
(out of the transplant division anyway). I felt like I was looking at 4 six
shooter pistols - all with 5 bullets spinning in them. They will all probably
kill me, but maybe, just maybe, one of them might have the empty chamber being
the magic "unbullet" that could save my life. Then I figured that this was
sort of the half empty glass way of thinking so I moved on.
The problem with the new designer drugs and chemo treatments is that they
have never shown promise to be a long time cure, but now there is a chemical
from Novartis called Gleevec. It works with CML patients, so why not with
me? If it doesn't work it could let the cancer multiply to where they will
no longer consider me for transplant. Would any doctor in hemotology/oncology
even take me and try using these new unapproved drugs?
I decided that if I did not at least try the Gleevec and maybe chemo method
before a transplant that I may be missing my one chance. I will search for
an appointment with a hematologist on Monday and go from there. My cancer
(Philadelphia chromosome activated) is at 1% now. Nobody knows at which percentage
the white cells start reacting malignantly, but at 5% they will refuse to
do a transplant and I am back with severe Leukemia.
Having to become a molecular biologist in a few weeks has definitely been
quite a task, but making decisions everyday that determine the short term
outcome of your life weighs on you after a while, especially when you have
time to think about it; just like the soldiers in Iraq that are constantly
making decisions that could determine the short term outcome of their lives.
I hope they are busy enough not to have to ponder these decisions, but instead
have the luxury of responding to these life-threatening decisions spontaneously.
I Hope everybody has a great weekend. Lots of Love, ERIC
- Thursday, October 2nd, 2003:
Today was not a good day. I slept until 12:00 noon and was feeling sort of
depressed about that. My morning sickness (nausea, stomach problems) were
severe today - they did not seem to let up until about 4:00 pm. Anyway, I
have these these types of days sometimes. The choices seem so hard to make
as each one seems to be like a loaded 6 shooter with 5 bullets in it. Haploid
(half match) transplant in Seattle? Umbilical cord blood transplant at the
University of Minnesota? Try Gleevec and other mostly benign chemos to keep
my cancer in check? What to do? Please God, tell me what path to take! Tonight
will be much better with my Dad and Nicole coming to visit for the weekend.
Love You All.
By the way, I booked my first party here for Thursday, October 23rd. It will
be a Luau for Leukemia!!
- Tuesday, September 23rd:
First of all, I would like to thank you all for your undying support. Without
all of you I sincerely feel that I would not be here today. As most of you
know, I came up here to Seattle to have a bone marrow transplant which Stanford
recommended as the only way to save my life from the cancer. Until recently,
I thought I had a 50/50 shot at making it if I got the transplant. As it turns
out (after speaking to several more professionals) I have come to realize
that this only provides a 10% chance at getting through this so I slammed
on the brakes and am furiously trying to find alternative solutions. This
is not easy to do while I'm feeling so ill, but knowing all of you are out
there is giving me the strength to do it. I promise to be better about giving
you updates as often as possible.
-
Wednesday, September 10th:
Today I will begin the treatment by undergoing a series of tests. Expect
to hear more about my progress soon.
-
Tuesday, September 9th, 2003:
Eric Drew made his way from Los Gatos, California to Seattle, Washington
where he is moving into his local residence at the "Hutch". He was tired
from the day and unpacking when we last spoke to him. Eric expressed that
he was already feeling sad to be away from home and was missing his comrades
and support group. Earlier in the afternoon he had the opportunity to speak
with some doctors in Switzerland about his cancer (we will post more details
about this later); Eric, as well as his friends and patrons at the Leukemia
Fund, aggresively continue to search for any probable cure or drug that
might help. Eric will be following up this posting regarding his status
via his own journal entries.
|
 |